Anthony
Project: Just Like You is proud to present Anthony! This is his story.
Anthony is 3 years old (he’ll be 4 in November.) Anthony is diagnosed with Trisomy 21 or Down syndrome. Trisomy 21 is a genetic disorder that occurs when an individual is born with 3 copies of their 21st chromosome. This extra genetic material causes cognitive delays, developmental delays, and medical issues.
According to his supportive mom, Amy, “Anthony loves all things music. He loves listening to music, singing songs, dancing to music, and playing music! He also loves Elmo and anything to do with Christmas, especially Santa. Anthony is awesome because he has the most infectious, sweet personality. He uses his smile to positively affect people wherever we go. Having Anthony has made me an infinitely better person. I am forced to slow down and appreciate the beauty and value in even the smallest things.”
Anthony, keep living life with your infectious, sweet personality! We love that you are so positive and kind. Keep dancing, singing, and enjoying the beat to the rhythm of life!
Anthony is #JustLikeYou
Gracelyn
Project: Just Like You is proud to present Gracelyn! This is her story.
Gracelyn Kate is 2 years old. She’ll be 3 next month. She has Trisomy 21 Mosaicism, which means that a percentage of her cells contain an extra chromosome, and some do not. According to her strong advocate mom, Lauren, “Gracelyn LOVES to sing and dance. One of her favorite movies to dance and sing along to is Frozen. She loves puppies and babies. She speaks to everyone she sees when we are out and about. She’s very social! Gracelyn is very smart and knows a little American Sign Language, which helps her to communicate with us! She gives THE BEST hugs and kisses and is super affectionate!”
Gracelyn, we love that you are so affectionate and friendly with others! Keep singing. Keep dancing. Keep bringing joy to all those you encounter!
Gracelyn is #JustLikeYou
Dexter
Project: Just Like You is proud to present Dexter! This is his story. **Today is #PANDAS/#PANSAwarenessDay. May we find a cure together through awareness and education.**
Dexter just turned 5! He is diagnosed with a #condition called #PANDAS/#PANS. According to his mom, Jessica, who works endlessly to bring awareness to #PANDAS/ #PANS, "Fortunately for him, he was able to obtain a #diagnosis fairly quickly. Most children go years without finding out what happened to their kid or they are misdiagnosed as having #ADHD, #anxiety, #OCD, #Tourette's or even #autism. Actually, we received an autism diagnosis a few years ago but it never fit quite right. It fit the DSM so he did officially have it, but we knew that many of his symptoms waxed and wane. He didn't fit the typical autism profile. My autism mom friends and therapists would say, "Well, no 2 children with autism are alike" and while I learned that was certainly true, my #momgut urged me to keep seeking answers.
The #diagnosis of #PANS showed me that the underlying root cause of my son's autism symptoms was actually caused by #braininflammation. And so the #physicianassistant we had been working with was able to start treating the #inflammation by eliminating triggers such a strep with prophylactic antibiotics and environmental triggers such as dust, mold, oranges and chocolate. He also treated Dexter with anti-inflammatories such as Quercetin, Boswellia and Advil. When we treated the source of his symptoms, they started to disappear. So for us, diagnosis meant treatment options outside of #ABA, #OT and #SLP, he was receiving. We always he knew he was physically sick. The diagnosis showed us what was going on in his little body to cause his "autism." My child is #awesome for so many reasons, but the most notable being the boy is a #fighter. Anxiety is a hallmark symptom of many PANDAS/PANS children. And Dexter's most prominent. He is the most anxious child I know, and yet, he is also the most brave. Where he is weak he is also strong.
Dexter is #brave, #strong, and we #celebrate his #journey. Dexter is #JustLikeYou
Emory
Friday is Friendship Circle of Virginia Friday!
Project: Just Like You is proud to present Emory! Here's his story... Emory is an #amazing, #kind, #loving, #funny, and #athletic child. He is 12 years old.
On the surface, he looks like any other preteen, but underneath, he is fighting a disease 24/7, 365. In other words, Emory is a #warrior. He was diagnosed with Type 1 Diabetes when he was 5 years old. Since then, he has pricked his finger over 2500 times.
He must count the carbs, weigh his food, calculate how much activity he is going to do, and deliver insulin accordingly for every single morsel of food that enters his mouth. He wears a pump that is attached to his body at all times. When he was little, he used to say that he wasn't really a boy but a robot because of all of the machinery attached to his body. Emory has to check his blood sugar at least once during the night. Some nights are good and he can sleep, other nights we are up every two hours to try and get his diabetes under control. No matter what, we still get up, put a smile on our face and greet the new day with hope and joy. Diabetes has never stopped Emory. He plays sports, he swims, and acts like any other crazy preteen boy. He just has to do it all differently. If we were to go back to diagnosis, I think the only thing I would change would be to bring a child who already had type 1 or a psychologist in to speak to Emory. When we were in the hospital, Emory could see all of the tears and emotions from our family. I think it scared him, but he didn't talk about it! I think having someone tell him he was going to be okay would have made the transition to our new normal would have been easier.
But here we are, 7 years later, and Emory is nothing less than a superhero. He is the kind of son every mother would want, the kind of kid every coach wants to have on his team. He is just a little sweeter!!
Emory is #JustLikeYou
#diabetes1 (Photos shared with permission)
Savannah
Project: Just Like You presents Savannah!
This little heart warrior will be 2 in March! She loves her #dogs and loves to #play dress up! She had her open heart surgery at 3 months old. She was in the hospital for 4 days and totally kicked open heart surgery butt! She is full of life and is the sweetest little girl. She dances and loves to sing "You Are My Sunshine". Savannah is #JustLikeYou!
Project: Just Like You is proud to present Savannah's story!
#heartwarrior
#JustLikeYou
Alexander
Project: Just Like You is proud to present Alexander!
Here's his story... Alexander, nicknamed Aj, is an independent and fearless 20 month old who loves Mickey Mouse, Paw Patrol, and playing with his brother and sister!
Aj was diagnosed with Hypoplastic Right Heart Syndrome and Transposition of the Great Arteries, meaning the right side of his heart does not function and the two main arteries leaving his heart are reversed.
If there was one thing Aj's mom, Brandi, would do differently, it would be reaching out to other heart moms at Aj's diagnosis because there is a great support system out there!
Aj is #JustLikeYou!
Cameron
Project: Just Like You is proud to present Cameron!
Cameron is a happy 10 month old who loves to explore and hang around his older siblings. He loves taking a bath, playing in water and getting into everything!
Cameron was diagnosed at birth with a heart defect called mixed TAPVR, which is when the pulmonary veins that carry oxygenated rich blood from the lungs to the heart are abnormal and do not connect correctly to the left side of his heart.
In Cameron's case, all four veins were connected improperly to his heart with one being obstructed (unable to repair so was left untouched but poses no threat or issues). Because all four of his pulmonary veins were connected improperly he also developed ASD (a hole in his heart), allowing mixed blood, oxygenated and unoxygenated, to reach the left side of his heart and then be pumped out.
If left untreated he was given a couple weeks to a month to survive. So at four days old he had corrective surgery to correct three veins which also fixed the hole in his heart and has had no problems since!
Cameron's mom, Victoria, brags on Cameron, stating, "my child is awesome because despite being hospitalized for two months following surgery at four days old he has reached all milestones for his age now (10 months) with no delays- a blessing for sure!" Cameron is #JustLikeYou!
Aerin Amelia
Project: Just Like You is proud to partner with #FriendshipCircleofVirginia to present Aerin Amelia!
Aerin is eleven. She loves to swim, play with her siblings, build elaborate structures with Lego and magna tiles, watch YouTube videos, play computer games, surf, do puzzles, run races with United Athletics, and participate in Friendship Circle.
Aerin was diagnosed with autism when she was 2.5 years old. Basically, this means that Aerin’s brain is wired differently than allistics (non-autistic people). She experiences the world and expresses herself differently. She is nonverbal and communicates with an AAC device.
Aerin's super-mom, Kara, has this to say about if she could go back to the time of Aerin's diagnosis, "I wish I had known that the common misconceptions about autistic people are just that: misconceptions. Aerin loves people and crowds and is the most affectionate member of our family. She’s the happiest person we know. Our lives aren’t tragically burdened. Parenting is hard. Raising an autistic child isn’t harder than raising an allistic child – it’s just hard in a different way." "Aerin has been given such a challenging path and lives her life with joy and grace. She was born 14 weeks early, weighing just 1 pound, 12 ounces. She spent 92 days in the NICU and PICU, where she endured intubation, a staph infection, extreme jaundice, severe anemia, 6 blood transfusions, and pneumonia. She was quarantined for 2 years with a rare vascular tumor and underwent major surgery to remove it. As an autistic person, she has to live in a world that functions at a different frequency. She has learned to manage the sensory overload and frustrations better than most adults." Aerin has an uncanny ability to touch every person she meets. Last year she received the Pride of the Principal Award at her school and the entire 4th grade gave her a spontaneous standing ovation. She makes friends wherever she goes and has an impossibly infectious sense of humor and enthusiasm. She has surfed every summer for the past 3 years and completed dozens of races as an assisted athlete, including 5 half marathons!
Aerin is #JustLikeYou!
@fcofva
Jessa RaeLynn
Jessa RaeLynn is 1 year old. She loves to play with all her #toys! Especially the ones that makes noise! Loves when #mommy and #daddy #read her #books, and she loves to eat!! She was diagnosed with- TAPVR-Total anomalous pulmonary venous return. This is a #heart#disease that affects the #pulmonary#veins.
If her dad, Chris, could go back in time to the diagnosis, he wishes he knew then that "every kid is special in their own way and that there are so many groups of people who have been through the same stuff we went through." All these families want to spread love by sharing the many stories about their kids!
My child is awesome because "she's been through so much at such an early age and she has always had a #smile on her face and is always #happy!" Chris continues, "she's our world! Having a kid that had #CHD has changed our outlook on life. She has made both her mommy and daddy look at life different for having to go through this with her!" Jessa RaeLynn, your life raises hopes from not only your own parents, but all of us who read about you. May your zest for life be #strong. May you live #courageously and your #light continue to #inspire all those who know you.
Jessa RaeLynn is #JustLikeYou
#CHD
#heartwarrior
Garry
Project: Just Like You is proud to present Garry. Garry is from the United Kingdom and is part of Project: Just Like You’s global initiative!
Garry was born with Tetralogy of Fallot and hypoplastic main pulmonary artery. Garry says that even though he went from hospital to hospital in the UK, his parents, once told he would be okay, encouraged him to lead a completely normal life. He’s since had several surgeries but has amazed the doctors and nurses with the speed of his recoveries. Garry loves to jetski, worked on board sea going tug boats as a marine engineer, and currently works as chief mechanic on an offshore oil platform.
Gary says, “Apart from [TOF] I am living and working normally with just the odd bump along the road. In the future I will need a new pulmonary valve but this will be done via keyhole rather than open heart. To be honest I don't really think about my heart condition, maybe due to being told I was repaired for life for so long. I got used to thinking I was like anybody else who is heart healthy. So [I] don't really let it get me down. I will worry when the next issue comes. Until then will just carry on living the best I can.” Garry, thank you for your strength and positive attitude! Garry is #justlikeyou!
#HeartWarrior
Collette
Project: Just Like You would like to introduce Collette!
Collette has Pulmonary Valve Stenosis, Atrial Septal Defect (ASD) and fused pulmonary leaflet, all types of Congenital Heart Disease.
Collette loves to read books. She makes up her own stories. She also loves her friends and playing at school with them. Minnie Mouse is her favorite show. She loves being a little mommy to her baby sister and dolls. Her new favorite thing is painting mommy's nails and having her hair braided. She'll do anything for a "surprise" (chocolate or candy). She's super independent and likes to pick out her own outfits even if they don't match at all.
She's loving, friendly and happy. Collette is #JustLikeYou!
#HeartWarrior
#CHD
Lacy
Project: Just Like You is proud to present Lacy!
Lacy is a spunky heart warrior who will be two years old in May!
Her mother, Tara, states that at her 20 week scan, a heart defect was detected. She was born with HLHS (hypo plastic left heart syndrome) & basically only has half a heart. She had her first open heart surgery at UVA at four days old and spent a month in the hospital. She had her second open heart surgery at almost six months old, and will have her third and final surgery at age three.
Lacy full of energy and keeps her laughing! She loves going to preschool, watching Paw Patrol, riding in her wagon and loving her little brother Bryce. Lacy's family is so proud of their heart warrior!
Lacy is #JustLikeYou!
Caleb
Project: Just Like You is proud to present Caleb. This is his story!
Hi! My name is Ashley and this is my son Caleb. He is 5 years old and enjoys #racing his #cars, watching #movies and anything to do with the Power Rangers. He is awesome because he faces each obstacle with such grace.
He and was born with Coarctation of the aorta, a leaky mitral valve and thickening of the heart walls. He was has 1 surgery so far and 2 other procedures done. He doesn't let having a defect get him down.
Caleb, may you never let this get you down. May you always be strong and go full steam ahead in all you do. And may your heart always be strong with love and kindness.
Caleb is #JustLikeYou
#HeartWarrior
#powerrangers
Miles
Project: Just Like You is proud to present Miles! This is his story.
Miles is 1.5 years old. He loves to #play#outside, #play with his #sister, #cuddle with #momma, #ride the #tractor with #daddy, and make everyone #laugh!
He is diagnosed with a VSD, possibly TOF with pulmonary valve stenosis. His cardiologist was on the fence about whether he truly had/has TOF or if the additional symptoms were the result of his heart working too hard. He was diagnosed in utero after several fetal echoes.
This means Miles had a hole in his heart. At 4 months old, his heart was enlarged from overworking and he experienced congestive heart failure prior to his surgery. TOF consists of 4 issues: an obstruction of blood flow at the pulmonary valve that reduces the blood flow to the lungs); the hole; an overlying aorta and a thickening of the muscle near the lower, right chamber.
If you could go back in time to the diagnosis, what is the one thing you wish you knew now?
His mom Brooke wishes she knew at the time of diagnosis that "she would've reached out and connected with other heart moms for support. We went into his surgery, not knowing what to expect on an emotional level. It was an extremely long ten days in the hospital and it would've been amazing to connect with other heart moms in the community." Brooke continues, "My child is awesome because he is so strong! He hasn't let CHD slow him down. He has such a big personality and loves to make everyone laugh! He loves to be the center of attention and is a social butterfly. He's very smart, too!" Miles, keep going strong. Keep plowing ahead. Hit life with gusto and courage!
Miles is #JustLikeYou
#heartchild
#CHD
Follow Miles on Facebook-
http://www.facebook.com/teammileschd
Addison
Project: Just Like You is proud to present Addison!
Addison is 10 years old and has dilated cardiomyopathy. This means her heart is enlarged and weakened, so it doesn’t pump as well as it should. She also has some regurgitation in her mitral valve.
Addison’s super mom, Rebecca, says that if she could go back in time to the diagnosis, she’d tell herself, “While the diagnosis is real, each child is different. We were told that Addison would need a heart transplant by the time she was two years old. She’s now ten and still has not had a transplant. Each child is unique, and they are not all “textbook” examples of how a condition will play out.” Rebecca tells Project: Just Like You, “Addison gives 110% effort in everything she does. Her resilience is amazing. She has such a big heart (literally and figuratively!), and she treats everyone with kindness. She is honest, respectful, and a good friend. Her outlook on life is amazing; she finds the good in everyone/everything. She works hard at everything she puts her mind to. Nobody wants their child to suffer from a heart defect, but I wouldn't trade her (or her diagnosis) for the world.” Addison loves swimming, field hockey, arts and crafts, math, skiing, and baking. Addison is #JustLikeYou!
Addison, thank you for your kindness and positive attitude! Your resilience and big heart make our world a happier place!
#HeartWarrior
#CHD
Nick
Project: Just Like You is proud to present Nick!
Here is his remarkable story.
Nick is seventeen years old, and is passionate about rock climbing, running, hiking and camping. He's very close to becoming an Eagle Scout, and he loves working with kids. He has a part time job coaching the junior rock climbing team, and he works at a climbing gym, which gives him plenty of opportunities to do just that! In the summer, he is also a trail running counselor at a day camp!
Nick was diagnosed with Oculotaneous albinism when he was two months old. Affected individuals tend to have very fair skin and white hair. Oculotaneous albinism also reduces pigmentation of the iris and the light sensitive tissue at the back of the eye. For Nick, this causes low vision, nystagmus (rapid, involuntary eye movements) and sensitivity to light. Since Nick spends so much time outside, he wears 20 SPF sunscreen, a hat, and sunglasses.
In Nick's own words, "some people make the innocent mistake of calling me "albino." I'm Nick, but I have albinism. Having albinism hasn't defined me. Have I experienced stares, whispers, and teasing because I look different? Totally. Has it hurt? For sure. I tried to be defensive, but that didn't make me happy. I made the decision that I would always choose kindness, especially towards those people.
I go out of my way to talk to them to show them I'm just as much of a human as they are. I'd smile and ask how they were-everyone loves to hear that. If I'm met with rudeness, that's fine. At least I tried. I'd like to think they went home that night and thought, "Man, why was I so rude to Nick? He's such a nice dude." I like to think that because I have low vision, I see people with less judgement. I'd like to think I'd be that way anyway, but it's definitely made it easier. It feels terrible to be judged, and I want to do my part in taking that part out of life. Showing people you care despite their inability to do the same is a learning experience for them. You can always be teaching someone something." Thank you, Nick, for your inspiring and encouraging story. May your kindness and enthusiasm for life continue to guide your way.
Nick is #JustLikeYou!
Carter
Project: Just Like You is proud to present Carter!
Carter is an energetic four years old, and loves to sing, read stories, "play" mario kart, and go to the movies!
Carter was diagnosed with Acute flaccid myelitis, which means that Carter went from being a perfectly healthy toddler to a quadriplegic now dependent on a ventilator in a matter of 24 hours. Very few people have ever recovered and the only movement he has is in his right toes and left face. It means he is wholly dependent on Mom Dad and family for every need.
If Carter's mom, Robin, could go back in time, she says "I wish that I had known what this disease was or that it even existed. We are trying to spread the word about Carter story and other children a similar diagnosis to share awareness and hope." She continues, "My child is awesome because he is still so spunky and we'll humored despite such sudden changes. His smile and sense of humor truly delight our entire family.
Carter is so smart and so handsome. His voice and spirit are what keep us going in the most exhaustive days. His love of learning is amazing and despite his physical limitations he is a sweet brother to his 2 sisters." Carter, may your light and spirit continue to shine bright! Carter is #JustLikeYou!
#quadriplegic
#accuteflaccidmyelitis
Devin
Project: Just Like You is proud to present Devin!
Devin is twelve years old and loves #computers, #video #games, and participating in a #military program. He loves the #police department and wants to join the police explorer program in his city when he turns thirteen years old!
and has #ADHD, congenital pulmonary hypoplasia, atrial septal defect, and scimitar syndrome. In basic terms this means that when Devin was born he had a hole in his heart and his right lung was small and missing a quarter of it at the top. He also had anomaly that grew and attached to the wrong side of the heart causing oxygenated and un-oxygenated blood to mix which deprived the rest of his body from getting the full amount of oxygen it needed in order for him to grow and be healthy.
Devin's mom says, "Devin was only diagnosed a year ago but it should have been caught way before now. If anything, I wish I had pushed the doctors to do a chest X-ray every time he had been sick, especially after getting pneumonia multiple times. I wish I had pushed my son's pediatrician harder when an outside ER doctor told me to get a chest X-ray when Devin was healthy because then maybe he would have been diagnosed sooner and his open heart surgery wouldn't have been an emergency. "But Devin made open heart surgery look easy and never showed any signs of being scared, concerned or sad even though I couldn't be with him all the time due to my own medical problems. These issues mean I can't be with him as often as I'd like.
Devin is amazing because no matter what goes on he keeps on going strong. He makes me laugh, cry, and be thankful he is my son. We both faced a terminal disease and we both survived it which is something most parents and children do not have in common." Devin is #JustLikeYou!
Devin, thanks for sharing your laughter and your strength with us! We're proud to have you in our community!
#heartwarrior
Caitlyn
Project: Just Like You is proud to present Caitlyn! Caitlyn is a therapist for The Greater Richmond ARC. This is her story.
Caitlyn Berry, OTR/L, Occupational Therapist "A passion for helping and serving others has always been a driving value in my life. When I learned while in college about the broad career of Occupational Therapy which helps people across the lifespan participate in the things they want and need to do, I knew it was the job for me. We define occupation as every task you do during your day, from getting dressed in the morning and brushing your teeth, to driving, caring for children, cooking dinner, virtually every aspect of one's life.
For the young children I work with, their primary occupation is playing and beginning to learn self-care tasks like dressing themselves, potty training, and feeding themselves.
I currently work as a pediatric occupational therapist in Early Intervention with children birth to 3 years of age who demonstrate delays. I also work with older children through outpatient clinic-based therapy services.
I view all kids as so full of hope and potential; they are like little sponges ready to learn so much. I treasure working in Early Intervention and getting to help parents discover strategies to help their children reach their milestones and goals in the natural environment. I am gracious to every family that allows me to come into their home to provide therapy and I cherish the relationship that I am able to build with each family. Working with kids puts a smile on my face every day. I truly love what I do!
I graduated from VCU with my Masters of Science in Occupational Therapy in December of 2015. So I am a newbie, having only been in this field for about a year. I find I learn new things every day and look forward to continuing to learn and grow throughout my profession as an occupational therapist." Caitlyn, thank you for your continuous dedication and hard work! Your joy shines in what you do.
Thank you for helping to make our kids #JustLikeYou!
#greaterrichmondarc
#occupationaltherapy
@greaterrichmondarc
Erin
Project: Just Like You is proud to present Erin! This is her story.
This week we are spotlighting the amazing therapists from the The Greater Richmond ARC.
Erin Whitman, OTR/L, Occupational Therapist "I have always enjoyed working with children. My first hands-on experience working with children with disabilities occurred when I was in elementary school. From that point on, I knew that I wanted to work in a field helping others, especially children. I was drawn to occupational therapy because of the many ways the profession can make a positive impact in the lives of children.
I love seeing the many positive changes that occur in the lives of the children and helping families work through the challenges that arise.
I have over twelve years of experience working as an occupational therapist in a pediatric setting." Erin, we love that you want to help children to achieve their full potentials in their ABILITIES! Thank you for dedicating your life to help make others a better one! Thanks for helping our kids be #JustLikeYou
#occupationaltherapist
#greaterrichmondarc
@greaterrichmondarc
Elaine
Project: Just Like You is proud to present Elaine. This is her story!
This week we are spotlighting the amazing therapists from The Greater Richmond ARC.
Elaine Kasten, Physical Therapist "I worked in pediatrics at the MCV Children’s Medical Center for ten years and then started branching out into other areas of pediatrics. I started working in Early Intervention in Petersburg and really loved the relationships I was able to build with children and their families. I feel very privileged to get to know these families and watch their children learn to sit up, crawl, and take their first steps. I also like the creative challenge of working with what’s available in the child’s home— using a crib mattress for a slide, two step stools in place of steps, or making toys out of items from the recycling bin.
I am passionate about the importance of teaching children to move and explore their environment, rather than spending too much time in an exersaucer or in front of a TV screen.
I have been a pediatric physical therapist for 35 years, with the last 22 years in Early Intervention. I have been at the Greater Richmond ARC for over 17 years." Elaine, your creativity and unique ways to help children thrive in their environments is a testament to your character and love for those you serve in your profession. May your little clients continue to thrive and grow and be #JustLikeYou.
#pediatricphysicaltherapist
#greaterrichmondarc
@greaterrichmondarc
Todd
Project: Just Like You is proud to present Todd! This is his story.
This week we are spotlighting the amazing therapists from The Greater Richmond ARC.
Todd D'Ambrosio, CCC-SLP, Speech-Language Pathologist "I have worked with adults and children throughout my career. I have enjoyed my interactions with both populations and found them both to be rewarding; however, I have found getting on the floor with the kids to be my niche.
I am most passionate about the support that I can give to the families that we service, so that they can meet the needs the needs of their children and challenge them to attain all of their potential.
I began working as a speech-language pathologist in 2003. Over the course of my career, I have been blessed to work with a variety of people to assist their communicative needs as best as I can." Todd, thank you for your dedication and passion for helping others achieve their full potential and be their best. Thank you for helping to make our kids #JustLikeYou!
Cara
Project: Just Like You is proud to present Cara! This is her story.
This week we are spotlighting the amazing therapists from The Greater Richmond ARC.
Cara Coffman, MA, CFCS, Developmental Services Specialist "Before working in Early Intervention, I coordinated and administered clinical research in the Center for Child Development at Children's National Medical Center in Washington, DC. After many years working in a clinical setting, I began to see the need to serve children in their natural environments, or home and community settings in which children naturally spend their time. It is exciting to see opportunities for young children as they thrive in familiar surroundings, with familiar people and things!
I am passionate that children receive the services they need. I enjoy seeing the positive impact Early Intervention has on the families our agency serves.
I have over twenty years of experience in child development by way of serving families, conducting research and directing programs." Cara, thank you for helping to make a positive impact on our children. Thank you for your energy and time dedicated to early intervention to help children thrive. Because of your continuous hard work, these children are #JustLikeYou
#earlyintervention
#greaterrichmondarc
@greaterrichmondarc
Doug
Project: Just Like You is proud to present Doug! This is his story.
Project: Just Like You continues to highlight The Greater Richmond ARC and all the amazing people who guide it so it serves all of their clients with the best care possible.
Doug joined ARC in 2005 as the Marketing Director.
Project: Just Like You-
Why did you choose to work for ARC?
Doug- It was by accident – a happy one. I honestly didn’t plan to stay long, but fell in love with ARC’s mission and the clients and families we serve. Prior to joining ARC, I worked for ad agencies and in the corporate sector. Working for ARC is one of the most rewarding experiences of my career in marketing.
Project: Just Like You-
What's your favorite thing about what you do?
Doug- Working with a dedicated staff of professionals and our families, telling ARC’s story.
Project: Just Like You-
What is the greatest joy in your work?
Doug- Being able to contribute to advancing the agency’s mission. The clients and families we serve are awe-inspiring and it is a joy to be able to tell their stories to a wider audience.
Project: Just Like You- How do you feel it's giving back to the community?
Doug- By providing programs and services that make a real difference in the quality of life for the people we serve. In addition, the ARCpark is the first free, community-facing, open to the public service we’ve offered in our 63-year history. It has been a huge hit with the greater Richmond community since opening in August 2015.
Doug, we in RVA love our ARCpark. And we parents and caregivers are so thankful for the continual strong development and progress we see in our children because of the dedication ARC continues to provide is a
testament to those who lead. Thank you for your commitment to make our kids #JustLikeYou
#greaterrichmondarc
#directorofcommunications
@greaterrichmondarc
Kim
Project: Just Like You is proud to present Kim. This is her story!
Project: Just Like You continues to highlight The Greater Richmond ARC and all the amazing people who guide it.
Kimberly Watson is the Vice President of Development and Communications for the
Greater Richmond ARC Project: Just Like You-
How long have you been with ARC?
Kim- I have been with the Greater Richmond ARC for 34 years. I joined ARC as its early intervention program’s first speech language pathologist. Today, I am ARC’s Vice President of Development and Communications. Project: Just Like You-
Why did you choose to work for ARC?
Kim- I loved working with children, and I loved working with a multidisciplinary team of specialists, which included occupational therapists, physical therapists and special educators. At ARC I got to do both, and I got the added benefit of problem solving and sharing my knowledge with parents, who participated in all of my therapy sessions.
Project: Just Like You- What's your favorite thing about what you do?
Kim- I really love to see a project that will make a difference for families come to fruition. In all my years at ARC, I was never prouder than seeing families come through the gates of the ARCpark in 2015, because it was their dream to have a park where everyone, no matter their abilities, can play side by side.
Project: Just Like You- What is the greatest joy in your work?
Kim- Today, my greatest joy is seeing the number of young professionals who are joining ARC’s team. As I watch enthusiastic new therapists working in our early intervention program or bright young program directors honing their leadership skills, I know our families will be in good hands well into the future.
Project: Just Like You- How do you feel it's giving back to the community?
Kim- If ARC had to close our doors today, where would our families be? They would have to start all over again, doing what families did in the 1950s; they would be fighting for the opportunities and community supports that their kids need and deserve. They’d be fighting for their preschoolers, their school age children.
#JustLikeYou
#VPDevelopment
#greaterrichmondarc
@greaterrichmondarc
John
Project: Just Like You is proud to present John! This is his story.
Project: Just Like You continues to highlight The Greater Richmond ARC and all the amazing people who guide it so it serves all of their clients with the best care possible.
John B. Walker- President & CEO
Project: Just Like You- How long have you been with ARC?
John- I joined ARC on June 1, 2015, so as of today I have been here for 21 months.
Project: Just Like You- Why did you choose to work for ARC?
John- ARC represented a great opportunity for me to do what I love, which is to run a medium-sized organization, while helping a group of people that truly need help. It is wonderful way for me to spend the last 10 years or so of my career.
Project: Just Like You- What's your favorite thing about what you do?
John- The ARC staff is full of bright, passionate people who want to make a difference in our clients and their families' lives. My position as CEO gives me the opportunity to coach and mentor many of them on how to be more effective in their jobs. I am able to help our clients by helping our staff be more successful.
Project: Just Like You- What is the greatest joy in your work?
John- Watching our campers arrive at Camp Baker for a week of summer camp is an incredible experience. Many of our campers have spent a week or more at Camp Baker every summer for years. Seeing the expressions of joy on their faces as they arrive on Sunday afternoon is simply wonderful.
Project: Just Like You- How do you feel it's giving back to the community?
John- Our clients at Greater Richmond ARC represent some of society’s most neglected members. The services that we provide make a very real and important difference to our clients and their families. I cannot imagine a greater gift to the community than the one that our staff, volunteers and donors give every day.
John, thank you for using your gifts and talents to mentor. Thank you for guiding an organization that gives back so much to the community though the many services and outreaches. Thank you for your continuous belief that every child can be #JustLikeYou
#greaterrichmondarc
#presidentandceo
#specialneeds
@greaterrichmondarc
Valerie
Project: Just Like You is proud to present Valerie! This is her story.
Project: Just Like You continues to highlight The Greater Richmond ARC and all the amazing people who guide it so it serves all of their clients with the best care possible.
Valerie Tillies – ARC Board of Directors
Project: Just LIke You-How long have you been with ARC?
Valerie: I have served on ARC Board of Directors since 2014
Project: Just LIke You-Why did you choose to work for ARC?
Valerie-Professionally, I am a non medical practitioner that focuses on children and adults with special needs. Joining the Board of Directors is a rewarding way to share my skill sets and talents with a non-profit that serves the special needs community.
Project: Just LIke You-What's your favorite thing about what you do?
Valerie-My favorite thing about being on the board is watching a project go from an idea all the way to completion.
Project: Just LIke You-What is the greatest joy in your work?
Valerie-Service on a Board of Directors has provided invaluable professional development skills. Since joining the board I now represent Greater Richmond ARC on the ARC of Virginia Board of Directors. I have grown so much personally and professionally, and made life-long friends along the way.
Project: Just LIke You-How do you feel it's giving back to the community?
Valerie-There are obvious things the ARC has done for our community, such as the ARC Park, but what people don’t always see is the advocacy portion. I help provide a voice for many who cannot, or do not know how. Being an advocate insures our senators, schools, budget conferees, etc. all understand the challenges and cost associated with those with developmental disabilities and intellectual disabilities.
Valerie, thank you for your commitment to individuals with special needs and for your passion in giving a voice to those who need it most. Thank you for helping every individual feel like they are #JustLikeYou.
Julee
Project: Just Like You is proud to present Julee! This is her story.
Project: Just Like You continues to highlight The Greater Richmond ARC and all the amazing people who guide it so it serves all of their clients with the best care possible!
Julee Fletcher- Senior Vice President & Chief Financial Officer
Project: Just Like You- How long have you been with ARC?
Julee- Just over a year. I started in January 2016.
Project: Just Like You- Why did you choose to work for ARC?
Julee- I wanted to play a more meaningful role in the community, and this opportunity allowed me to do that. I also like being able to apply the management and financial skills I’ve developed during my corporate career to this wonderful non-profit agency.
Project: Just Like You- What's your favorite thing about what you do?
Julee- I love my job! I truly like being able to help the agency set its strategic direction and achieve its financial goals and objectives.
Project: Just Like You- What is the greatest joy in your work?
Julee- I so enjoy working right next to our clients and direct care staff, so I can see all the great work that is done day in and day out. I also love working with such a talented group of leaders and staff.
Project: Just Like You- How do you feel it's giving back to the community?
Julee- Our mission is to create life fulfilling opportunities for individuals with disabilities, and I truly think we live up to that mission – I see it in action every day.
Julee, thank you for leading the financial piece. With your supervision and guidance, ARC continues to provide more for the community and can give back on an even bigger scale. You help make it possible for us to partake in activities to be #JustLikeYou
#EVP
#COO
@greaterrichmondarc
Jackie
Update: Jackie has won the bronze medal in Alpine skiing! Congratulations, Jackie!
Project: Just Like You is proud to present Jackie! Jackie is representing Special Olympics South Carolina at the Special Olympics World Games 2017 in Austria.
Jackie hails from South Carolina. She has 2 sisters, one older and one younger. She is competing in Alpine Skiing. She writes "I have been skiing since I was 8 years old, so 28 years. She trains by "...skiing in Boone, NC and also does dry land training." At the World Games, Jackie is most looking forward to "seeing a new Country, meeting new athletes from all over the world, competing at a new place, and hopefully winning a Gold medal or two." Jackie enjoys watching baseball, football, skiing, hockey and Nascar.
Jackie writes, "It is my family that always supports me and is there to help me achieve my goals. My Mom is always there for me." Jackie, we are so proud of all your hard work and representing our country in Austria. We know you have trained hard and will do your best while you are there! No matter the outcome, we remain behind you and support you in all your endeavors.
Jackie is #JustLikeYou
#worldgames
#alpineskier🏁🎿❄ #bronzemedalist
@specialolympicssc
Ashley
Project: Just Like You is proud to present Ashley! This is her story. Ashley is a mom with a special needs child and she is affiliated with Richmond Mom Prom.
Ashley finds the greatest rewards as a special needs parent is "I love the days (or instances) when something so normal for other children happens for my son. He had a very difficult time learning to speak, and still has a speech delay and intelligibility issues, but I will never forget the first time he told me, “I love you, Mommy.” He also has difficulty with motor skills, engaging in new experiences, and being around groups of people, but last Saturday he went out to his first T-ball practice and loved it. Anything good that seemed great with my first two children seems miraculous when it happens with Mason." Ashley continues, "Mason is just like every other child, it’s just that there are so many highs and lows, and the highs are incredibly high, but the lows can be incredibly low. The other remarkable thing about our life now is how resilient we have become because of Mason. Things that used to seem like big problems before Mason now just seem like small, fixable nuisances. He has made us so much stronger." Ashley finds herself exhausted because "I put so much of my energy into my family and my teaching that it’s hard to have anything left over for me. I know all parents are tired, but it’s like having a toddler who never grows out of toddlerhood. He will never grow out of this. It’s not a phase, it’s a way of life." Ashley writes "Mason can do so much more than we were told he would be able to do, and that is such a blessing. We love that he laughs at potty words just like any other kid, he teaches us about his special interests like space and the United States, he loves his friends and teachers at school, and he is the pillow-fight champion of our house. He is so much more than his diagnosis." And while she cannot attend MomProm this year, she still talks about why MomProm is important "it provides an opportunity for moms to let loose, support each other, and support those in need."
Ashley is #justlikeyou
#momofspecialneedschild
#rvamomprom
Amanda
Project: Just Like You is proud to present Amanda! This is her story.
Amanda Moore, is the co-founder of both the Richmond Mom Prom and Hampton Roads Mom Prom. She shares her very open, candid, and touching story of her son Carter and how his anxiety has affected their whole family. "When my son Carter (now 8) was [5] and ending his pre-K year his anxiety which was always present, evolved into a level foreign to us. He had panic attacks and feared to leave the house. It broke our hearts. His doctors educated us about the severity of his mental health state at such a young age so we could take the steps to better his life and overall wellbeing. His illness prompted us to seek a private school environment. Our home public school was overcrowded and we reasoned he would be overwhelmed there. Thankfully, he thrived his kindergarten year showing no symptoms in the classroom, forming wonderful friendships, and exceeding the academic standards." "In Carter's last few months of kindergarten, almost exactly a year from the start of his anxiety disorder, which is standard progression for his diagnosis, things changed. He did and said things I was complete unfamiliar with. It was obvious his behaviors weren't "normal" and it was quickly affecting everything about his life and that of his siblings, and was extremley worrisome and stressful for my husband and I."
We made an appointment with his Peditrician immediately. He told us about a doctor who helped design a pediatric program for this particular mental illness for MCV-Medical College of VA. This doctor doesn't take new patients or insurance, but heard about my son and the severity at such a young age, and called us one night to ask if he could meet Carter. Our connection was a game changer; an opportunity I'm forever grateful for. To this day, we don't know how he found us.
Carter was diagnosed with Obsessive Compulsive Disorder. Before he was born, I worked with mentally ill adults, so I understood the severity of the situation at hand. I wanted to have a nervous breakdown and lock myself in a dark room for days on end but knew I couldn't. My children needed the best of me.
#momofspecialneedschild
#OCD
#rvamomprom
Craig
Project: Just Like You is proud to present Craig! Craig is representing Special Olympics Virginia at the Special Olympics World Games 2017 in Austria.
Craig will be competing in the speed skating competitions, and has been speed skating for about 6 years. He already has one bronze in the 777M race!
In his own words, "I practice at the Richmond Ice Zone off Midlothian Turnpike. Since I was given the opportunity to compete in the World Games, I've focused on my speed and stopping techniques at the Richmond Ice Zone and I workout and lift weights with my mom at the gym." At the World Games, he is "looking forward to meeting people in a different country and competing in the World Games." Craig has a big sister named Tequisha Licorish, who'll be graduating from VCU this coming May.
He likes to watch baseball, swimming and different styles of Martial Arts.
When asked about people who inspire him, he replied, "Honestly, everyone! My family, friends and teachers all give me so much support." Craig, we are so proud of you and all you have accomplished! Your energy, passion and zest for life are admirable! We will be rooting for you and know you will represent us well!
Craig is #JustLikeYou!
Photo by Rich Terrell, found in Richmond magazine and courtesy of Special Olympics of Virginia.
#specialolympicsvirginia
#specialolympicwinterworldgames2017
#bronzemedalist
#speedskating
@specialolympicsva
@richmondmag
Keith
Project: Just Like You is proud to present Keith! Keith is representing Special Olympics South Carolina at the Special Olympics World Games in Alpine Skiing.
Keith is from South Carolina. He's 64 years old and has been in Special Olympics for more than 30 years. He's competed in two World Games, '95 World Summer Games in New Haven, Connecticut(swimming) and '97 World Winter Games in Canada (skiing). He has one sister, Pam Cox. He most enjoys watching skiing and golf.
He started training with a local trainer Ernest Graham in July of 2016. Keith says "I have been walking, jumping jacks, arm swings toe touches, side stretches, groin stretches, leg swings, wall squats, rope drills and more." He is most looking forward to bringing back the Gold at the World Games.
Keith, we now know you have the silver in alpine skiing. You gave it your best and are coming back home with a silver medal and we here in the states could not be more proud! Keep trying hard in everything you do. You live a life of pushing yourself to be the best version of you while continually qualifying for the World Games time and time again. May you always be making strides in your sports and in your life.
Keith is #JustLikeYou
#Alpineskiing 🎿🇺🇸
#silvermedal
#Worldgames
#specialolympicwinterworldgames2017
#specialolympicssouthcarolina
Chrissy
Update: Chrissy is coming home with a SILVER!! 🇺🇸👏🏻👏🏻👏🏻
Project: Just Like You is proud to present Chrissy! This is her story. Chrissy is representing Special Olympics Virginia at the Special Olympics World Games 2017 in speed skating.
Chrissy's dad, Fredrick writes, "Chrissy will be competing in Speed Skating, she will race in the 200 and 300 meter races. She has been skating for 14 years with Special Olympics." "She started out competing in skills and she gradually moved up to where she is today. She has been training for the World Games for about a year. She has been ice skating 2 times a week for 90 min to 2 hours. She roller skates once a week for 2 hours once a week and she speed walks 2 to 3 times a week for 2 to 3 miles. We also lift weights one to two times a week." Fredrick continues, "I think what she looks forward to is actually competing with other skaters from around the world and seeing another country. Chrissy likes watching football and college basketball with me. She also competes in roller skating, basketball, bowling and softball. I think she looks up to her older sister Bridgett who is an athlete. Bridgett always goes to all of Chrissy's competitions to root her on." Chrissy, we are so proud of your accomplishments and endurance. We wish you the best in Austria. Keep pushing and pursuing your dreams!
Chrissy is #JustLikeYou
#specialolympicwinterworldgames2017
#specialolympicsvirginia
#speedskating
@specialolympicsva
Taylor
Project: Just Like You is proud to present Taylor! This is her story.
Taylor is representing Miracles in Motion dance group in the state of Virginia for the Special Olympics World Games 2017 in dance.
Taylor has one sister, Mimi, who is 6 years old.
She is competing in the World Dance Contest as part of the Special Olympics World Winter Games. She has been dancing for 5 years- training by taking all forms of dance via Miracles in Motions dance company. Her father, Michael, said she is taking modern, ballet, hip hop, tap, and company.
She is most looking forward to "being able to dance dance dance "shake a tail feather." She enjoys watching "dance, ice skating, basketball, football." Taylor is inspired by her parents, friends, Mrs Kim (dance teacher), and sister.
Taylor, we now know you are coming home with a Silver! You did indeed "shake a tail feather" and did it well! Thank you for giving it your all, being strong and being the best version of you!
Taylor is #JustLikeYou
#WorldDance
#specialolympicwinterworldgames2017
#silvermedalist
@miracles_in_motion_va
Jordan
Project: Just Like You is proud to present Jordan! This is his story.
Jordan represents Miracles in Motion dance group at the Special Olympics World Games 2017.
Jordan hails from Virginia and is an only child.
He is competing in two categories in Dance- Solo and Crew. Jordan has been taking dance classes from Miracles in Motion Dance Troupe for 5 years. He takes 2 1/2 hours of classes each week.
At the World Games, he looks forward to meeting some celebrities and dancing in front of the World! And when he's not rehearsing his dance moves, he enjoys watching Basketball and Football.
His inspiration in dance is Michael Flatley of Riverdance. That's where he began to be interested in dance and particularly, Tap.
Jordan, you saw, you came, and you are coming home with the silver! We couldn't be more proud of a young man who has worked so incredibly hard to propel yourself to the World Games! Keep dancing. Keep moving. Your future is so bright. We cannot wait to see where your dancing shoes will take you next!
Jordan is #JustLikeYou
#specialolympicwinterworldgames2017
#silvermedalist
#dance
#WorldDance
#miraclesinmotion
@miracles_in_motion_va
Latrice
Project: Just Like You is proud to present Latrice! This is her story.
Latrice is representing Special Olympics South Carolina at the Special Olympics World Games 2017.
Latrice is representing South Carolina and competing in Snowboarding. She has 2 brothers Travis and Antwan.
Latrice has been training in snowboarding for the past 3 years. And she writes, "I'm very active throughout the year. Skateboarding has helped me to continue to improve my technique along with strength training." She continues, "I have always loved sports. All kinds! I play everything from volleyball, softball, basketball, and tennis." And she loves "...to watch basketball, football and tennis. Especially the New England Patriots!!! She looks forward to "exploring a new country, meeting new people from all of the world. I love to compete so I can't wait for the big slopes." And as for her inspiration "I'm inspired by Senera Williams because once she puts her mind to it she wins it all!" Latrice, you carried that inspiration and the attitude of Serena Williams, as you also won it all, and are coming home with that GOLD medal! Only, it was all your work, training, and dedication. We couldn't be more proud in the USA to have you represent us!
Latrice is #JustLikeYou
#specialolympicsworldgames
#snowboarding
#goldmedal
#specialolympicssouthcarolina
@specialolympicssc
Kristen
Project: Just Like You is proud to present Kristen! This is her story.
Kristen represented Special Olympics NC at the the Special Olympics World Games 2017 in downhill skiing. She took home two silver medals!
Kristen hails from North Carolina and has one brother who is a Senior at East Carolina and graduating in May. He has a chocolate lab named Maggy.
She has been training in downhill skiing for 5 years. And she trains by dry land training at a gym and when possible practice at Appalachian ski slope.
At the world games Kristen looked forward to "Seeing a new Country and meeting lots of new friends. Also trying new foods." Kristen likes to watch summer and winter Olympics when they are on. And she is inspired by her mom.
Kristen, in the process of learning to ski, you overcame your fears by pushing yourself to keep going. We are so proud of your accomplishments and winning the silver medals. You represented the United States in a positive manner. Keep skiing, keep training, and keep moving ahead!
Kristen is #JustLikeYou
#specialolympicsworldgames2017
#downhillskiing 🎿
#silvermedalist
#specialolympicsnorthcarolina
@specialolympics_nc
Rebecca
Rebecca is 33 years old. She enjoys listening to music, especially the Beatles. She also enjoys watching DVD's. Her favorites are Sesame Street and Shalom Sesame. She takes walks and loves eating out.
According to Rebecca's mom, Mindy, Rebecca, "never actually has been diagnosed. I've been told multiply handicapped. Developmentally delayed. And PDDNOS. Also been told she presents as if she has a mutated gene but it has never been verified." Mindy continues, "Rebecca is non verbal but vocal. She is incontinent. She needs assistance with everyday living such as bathing, dressing, grooming and eating. She cannot be left alone." Mindy writes "she seems to understand a good deal more than she can communicate back. However as she has gotten older, I think she is more aware of her limitations and it frustrates her. She has shown more anxiety and aggression the last year and a half." Mindy says, "I don't think it would matter if I knew more [if she had been formally diagnosed] then. It would not change how I have taken care of and loved her." Mindy states why she is so awesome! "Rebecca has a smile and a laugh that makes you smile. She continues to learn new things and every once in a while will do something that makes me realize how much she understands. She is non verbal and yet she has learned some words and a couple of signs. She has made me take nothing for granted." Rebecca, your happiness is contagious. Despite any setbacks in life, your smile lights up a room and you bring joy everywhere you go. We are all so thankful for you, Rebecca. You help everyone you encounter to be a better person, to give more and be more. Thank you for your light and beautiful heart!
Rebecca is #JustLikeYou
#nonverbal
#specialneeds
George
Project: Just Like You is proud to present George! This is his story.
George is 9 years old. He loves to play outside doing almost anything. He goes for #walks and #hikes on the neighborhood #trail, #swims, plays at the #beach, he likes humorous #books, and is learning how to read. He takes swim lessons and is doing really well. He enjoys going underwater to find sunken toys. He played #Unified#Basketball this past winter and got really good with making baskets. After the beach and swimming, he loves gymnastics! He goes to his youth fitness club and has fun working hard and showing how strong he is on the obstacle courses!
George is diagnosed with Down Syndrome. And if his mom Lara could go back to the time of the diagnosis, she now wishes she knew "How amazingly awesome this kid would be! He is teaching me how to be more patient, understanding, observant, and strong. He shows us how beautiful diversity is and through him we have made great friends, our family has been enriched and we have become better people. George works so hard to accomplish what he wants and he surprises me everyday what what he is able to do." Lara continues, " George is learning to read, learning to swim, learning to ride a bike, and play basketball. he is developing a sense of humor and makes us all laugh when he plays jokes on us. This past year he tried so many new things and is on the verge of mastering each one! He has met so many goals academically as well this year and he always succeeds when he sets his mind on something. I like to keep him challenged and he bravely takes on new situations and tries anything we throw at him!
George, your attitude and fighting spirit keep pushing you to try new things as you continually learn, letting nothing stop you or hold you back. We all see your abilities and know you do too! May you never let anything stop you from pursuing your goals and dreams in life.
George is #JustLikeYou
#downsyndrome
#specialneeds
#seetheablenotthelabel
Katie
Project: Just Like You is proud to present Katie! This is her story.
Katie is 15 years old. She loves Harry Potter books, loves pokemon and making videos about gaming.
Katie is diagnosed with Asperger's and has a hard with social skills.
Her mom, Brandi encourages other parents to get diagnosed as early as possible.
Brandi writes, "Katie is awesome because doesn't let anything stop her, she doesn't care what people think. She is an amazing big sister! She loves her two brothers and she takes the youngest brother on walks and she just doesn't let anything stop her." Katie, may your fearless attitude accompany you throughout your life. May you always follow your unique path with confidence and courage. Believe you can do anything and go anywhere!
Katie is #JustLikeYou
#harrypotter
#pokemon
#gaming
#sister
#brothers
#aspergers
#seetheablenotthelabel
Luke
Project: Just Like You is proud to present Luke! This is his story.
Luke turned 5 years old on March 26! We hope you had a terrific birthday little buddy!
He loves playing with his sister, Kate, #building train #tracks, #running #outside, playing with his stuffed #cats, #swing, watching #Disney's #Cars, and #swimming!
He was diagnosed with Autism, Apraxia, Sensory Processing Disorder.
This means Luke has trouble communicating. Autism prevents him from participating in social situations, but the apraxia is a motor planning disorder that prevents him from easily learning motor skills, like riding a bike or speaking. His sensory issues prevent him from feeling his body in space. He constantly feels like he is floating.
His mom Jill wishes she had known when he was diagnosed that "intense therapy works! Luke works hard in school four days a week with five days a week in therapy. I wish I had someone tell me two and a half years ago that it will be hard but we will have the most satisfying reward with a relationship with our son." Jill continues, "my child is awesome because he never gives up. He embraces new environments, new goals, new friends. He doesn't have to speak to tell you he loves you. Luke has opened our eyes to a whole new world, and his dad and I are so grateful to be his parents!" Luke, your strengths and joy for life are a gift to everyone you encounter. Thank you for teaching us all how to see life differently, how to appreciate other perspectives, and how to embrace new ideas and situations by your simply living life. You are a very special little boy and have so much to offer humanity. Continue to give life your best! We are all grateful for you!
Luke is #JustLikeYou
Follow Luke's journey:
http://theautismchecklist.blogspot.com/?m=1
https://m.facebook.com/theautismchecklist
#autismspectrumdisorder
#specialneeds
#seetheablenotthelabel
Julia
Project: Just Like You is proud to present Julia! This is her story.
Julia is an inquisitive 4-year-old girl who lives near Sesame Street. She loves to play with her best friends, Elmo and Abby Cadabby, but she also enjoys spending time with Big Bird. Her friend Elmo, in particular, is an advocate for Julia.
She enjoys painting, but not finger painting. She loves shapes, especially circles! She also loves making crafts, playing with blocks, and singing. Her favorite song is “Sunny Days.” She creates new and inventive ways of playing with her friends, such as “boing” tag. Julia enjoys movement such as jumping and bouncing. She eats her bananas with a fork. Her favorite toy is her stuffed bunny, Fluffster. Julia also has an older brother and a pet dog.
Julia is diagnosed with Autism. This means she finds new and creative ways to communicate and play with her friends and family.
Julia is awesome because she is brave, curious, and silly. She overcomes obstacles and moves outside her comfort zone to make friends with friendly monsters and fairies who live at Sesame Street. She does things even though she might be a little bit worried or anxious about them and continues to show her strength and kind nature.
Julia, we know your story will touch hearts all over the world. May you open dialogue and find ways to celebrate our differences with families around the world. We know you will move mountains and, at the same time, you are just one of the Sesame Street gang, enjoying life with your friends and family. We are so thankful for the gift of YOU!
Julia is #JustLikeYou
Julia's biography above is a result of interviews we conducted with Stacey Gordon, Julia's puppeteer and with Dr. Jeanette Betancourt, the Senior VP of Community and Family Engagement at SesameWorkshop. Stay tuned to Project: Just Like You to learn more about the amazing work they do for Sesame Street's inclusion programs!** Julia is an inspiration and brings hope for families across the world who have children with Autism Spectrum Disorder and other special needs as well as parents of neurotypical children who can learn about people with special needs in a safe way.
#julia
@sesamestreet
JP
Project: Just Like You is proud to present JP! This is his story.
JP is 12 years old. He enjoys #singing, #reading, playing #video #games, playing #baseball with Miracle League of Richmond, playing #basketball, #ice skating and #running track with Special Olympics VA, #swimming, making people laugh and going on vacation (even if it's a "StayCation field trip" to a hotel.
JP is diagnosed with Autism Spectrum Disorder (ASD). Autism Spectrum Disorder is a neurological disorder that impedes an individuals cognitive ability and social interaction with others.
According to his mom, Pam, "JP only knows he has Autism because we say it. He knows he is celebrated, he knows he gets a lot of attention, he knows he is great, he knows he is funny, he knows he is loved, he knows he's ... JP and that's plenty." Pam continues, "I know now that God chose me to be inspired by my child with Autism. It's not an accident, a punishment or a curse; it's an appointment from God and should be taken seriously. Not only were we chosen to be inspired by him, he was chosen to inspire because he has the perfect personality and determination to handle it. I wish I had known that on "Diagnosis Day" instead of 3 years later. JP is unapologetically him. He has no idea the impact he is having on the world. He has a book inspired by him and he graces the cover. He has a foundation named after him. He has a law named after him. He is an athlete. He is a great student. He has no behavior issues and he is ALWAYS JP!! Because he doesn't understand "who" he is to others, he's always true to himself. My child is Awesomely Autistic & Artistic!!" JP, you continue to soar and fly to new heights, inspiring everyone with your kind nature and your incredible will to succeed. You grace us all with you being "unapologetically" you.
JP is #JustLikeYou
https://www.facebook.com/JPJumPersFoundation
#aprilautismawarenessmonth
@specialolympicsva
@jpjfoundation
@governorterrymcauliffe
Isaiah
Project: Just Like You is proud to present Isaiah! This is his story! Isaiah is the little boy whose story went viral in early January when he went to the hair dresser. See link below.
https://www.google.com/amp/abcnews.go.com/amp/Lifestyle/hairdresser-sits-floor-ease-haircut-anxiety-boy-autism/story%3Fid%3D44570685
Now read about the amazing boy behind the scenes.
Isaiah is 4 years old. He loves to
watch #videos on his #tablet, #play with #dinosaurs and his Lion Guard and PJ Masks toys, watch #Disney Junior, with his big brother, and give the most amazing #lightitupblue
My child was diagnosed with Autism Spectrum Disorder in February 2016.
His mom, Jennifer writes "since most people on this site are familiar with what the ASD diagnosis means, at least from a medical aspect, I will tell what the diagnosis means to our family. Autism means slowing down. It means never taking anything for granted. It means celebrating the small victories, while still focusing on the big ones. It means facing your fears head on. It means taking the road less traveled, and appreciating that journey. It means love.
It’s not the end of the world. It’s the beginning of a whole new one. Things will be hard, but you will get through it. Your child is unique and beautiful. Their diagnosis will not define them, or you." Jennifer continues, "My child is awesome because He has the most beautiful soul I have ever seen. He’s so very smart! He can list every single dinosaur that has ever roamed Earth, and sing the words to every song he’s ever heard.
He is so very smart! He may not be able to do all of the things that other children can, but his ability to memorize and retain things amazes me. His light shines so very bright, and I am one lucky momma <3"
Isaiah, your diagnosis doesn't define you for sure! Your enthusiasm for life is contagious and your inner strength is strong. May you always take the road less traveled. May you always face your fears head on. And always, always celebrate your victories, both small and big!
Isaiah is #JustLikeYou
#aprilautismawarenessmonth
#asd
Clayton
Project: Just Like You is proud to present Clayton! This is his story.
Clayton is 4 1/2 years old. He loves watching and playing #basketball, #riding his balance #bike, playing on #playgrounds, #CuriousGeorge, Daniel Tiger, and Pete the Cat #books, water #slides, #cheering for #UVA, Sweet Frog, Krispy Kreme Chocolate glazed #donuts, #numbers and #clocks.
Clayton has Autism or Autism Spectrum Disorder, mild.
According to his mom, Brook, "Clayton specifically struggles with some social language, especially proper use of pronouns, telling stories, and initiating conversation. He has a hard time being too rigid in how he thinks something should be done or being flexible with any kind of change. He also struggles with some sensory processing, as loud noises or crowds cause great anxiety. Clayton got diagnosed two years ago almost to the day. He has worked so hard to make some incredible progress! His speech has progressed the most. He used to copy everything peers would do, but now he is initiating new activities with peers and appropriately playing along. He finally overcame his fears of potty training last summer as his therapists figured out the right incentive- a special counter that he could click to advance the numbers." Brook continues, "I really wish I could have known our dreams for Clayton didn't die with his diagnosis, but they are just different now. I think it took us seeing him make the incredible progress he has, so that we could believe again in his future. No one can really predict the future of any child, but it seemed even harder to imagine a hopeful future at his diagnosis. We have a lot greater hope for him now and his accomplishments don't have to fit in the mold of success the world values. Clayton helps others find the joy in the simple things from timers to garage doors!
Brook states, "He loves numbers and finds joy in looking at others' watches or asking how many floors one might have in his or her home." Clayton, keep pursuing your love of numbers! You have a future so bright. Thank you for your gift of laughter, finding joy in simple things.
Clayton is #JustLikeYou
#aprilautismawarenessmonth
#ASD
Cooper
Cooper or "Super Cooper" is 6 years old. Super Coops LOVES trains. He watches #videos ranging from Thomas the Train to ‘old-time’ train documentaries on his Kindle. He also loves looking at pictures of #trains and hunting them down in the real world. He enjoys #swimming and #splashing, jumping on the #trampoline and going to parks. He is a super physical kid and definitely a #sensory seeker. He requests that we #tickle and #wrestle with him constantly. He loves #kisses too! He is amazing at #puzzles. He also really loves #letters and the #sounds that they make.
My child is awesome because every single day is the best day of his life. He knows no worry. No greed. No anger. He wakes up every single morning with the biggest smile on his face and it lasts right through until bedtime. He inspires me to simplify my life. And for that I am thankful to him. He is my perfect boy and I will spend my life keeping him happy and safe." Cooper, if we could all be so lucky to wake up everyday and see it as the best day of our life! Thank you for modeling that for us. Thank you also for inspiring us to be more simple in our lives. May your light always shine bright and your internal strength be bold.
Cooper is #JustLikeYou
#aprilautismawarenessmonth
#ASD
@findingcoopersvoice
Shehryar
Project: Just Like You is proud to present Shehryar! This is his story.
Shehryar is 22 years old. He loves #music, #playing #piano repository, and #xbox (need for Speed Game)
He is diagnosed with Autism and Epilepsy. According to his father, Sohail, he has the cognition of 3 years old.
Shehryah is both "innocent and amazing" according to Sohail. Shehryah is "helpful, loves his siblings and helps in day to day chores." Shehryar, we love that you are so helpful and kind. True kindness and a generous heart is what brings peace and unity for families and humanity. This is a gift that it comes so naturally to you. Your innocence teaches us to slow down and appreciate the softer and more gentle things in life. We are so thankful for you!
Shehryar is #JustLikeYou
#aprilautismawarenessmonth
#lightitupblue
#ASD
Milo
Milo is 4 years old. He loves to play #trains with daddy, #read#books with mommy, #swing in his therapy swing with his "sissy's" pushing him. His #sisters are Rosslyn, who is 14 and Lillian who is 11. He is a fan of Paw Patrol and Finding Dory, but he only likes certain parts, so mom, dad, and sisters have to find those parts quickly! He loves to eat strawberry #yogurt and Tyson's dinosaur chicken #nuggets. Milo also loves to take #walks and ride his #bike around our neighbor pond. He loves his #preschool and all the friends he has made, and he LOVE beautiful days at the park..any park.
Milo was diagnosed with autism at 19 months of age. His mom, Wendy, wants new parents to know "I wish I knew that "it's okay". It's okay that he is different, because it doesn't change him. It's okay that he will have struggles, for it has made him stronger. It's okay to progress slowly, because it's progress no matter the pace. It's okay to fall down time and time again. It's okay to feel angry, sad, guilty, unloved, regret lonely, etc. for however long it takes you to stand taller than you were before. And it's okay to feel so unbelievably proud of your child for the most tiny accomplishment, because they are worth every ounce of work that we put in. Be proud, because that's okay, too." Wendy continues "Milo is an exceptional little guy. He has worked extremely hard to get to where he is today. He is also possibly the most observant person that we know. He hears, sees, and remembers so much that we are constantly in awe. Ask him what page we made it to in a book we read a week ago and he'll tell you.
In addition, he is funny. Very funny. He will bargain with us for a new toy, make up silly songs, or just dance around and be silly. He will provide silly commentary on our driving; he will let us know if we are going the wrong way.
Most of all, he is a sweet boy. He cares about his family, friends, and animals. He wants everyone to be happy and feel good. If we are upset or hurt the first thing he does is run for his doctors kit.
Milo is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Caleb
Caleb is seven years old and in second grade. He loves stuffed #elephants, #hugs, the #Hokies and the #Packers, #swimming, #camping, all things #planets and #volcanos and #NASCAR. His favorite driver is Jamie McMurray because he drives the #McDonald’s car—and hey, who doesn’t love a McDonald’s french fry? He does NOT like eating things other than french fries, ketchup and Goldfish crackers, learning to ride a two wheeler and buckling himself into the car.
According to his mom, Maggie, "Caleb is awesome because of how he sees the world. He loves people with an openness that knows no end. His smile can brighten any day! When he feels someone is being mean to me, he feels compelled to say, “I love you MOM" and give me a hug. I remember wondering if I would ever hear those words. But again, times change, things change and we are blessed. His joy keeps us keeping on!" Caleb, we love your bright smile and your kindness that pours out to all you meet. Your continued progress comes from YOU and your determination, with the full support of your amazing family. Keep thriving, keep growing, and pushing ahead!"
Caleb is #JustLikeYou
Project: Just Like You is proud to share Caleb's story!
#aprilautismawarenessmonth
#ASD
#lightitupblue
C
C is 5 years old. He loves to #play #cars and #cheer for his favorite #football team!
He was diagnosed with delayed gastric emptying, sensory processing disorder and autism.
This means for C that he eats food orally and through his g-tube, located in his stomach. His autism means that he has a different neurology than neurotypical people.
His mom Kristin wants new parents to know to "be gentle with each other as you navigate the new diagnosis. You will all find a balance of routine, learn new strategies for communicating with one another, and experience as much (or more!) joy as you will setbacks." Kristin continues, "My child is awesome because he makes us laugh every day with his humor and wit." C, despite any difficulties life may throw your way, you continue on with a smile and with courage. Your daily life activities are filled with activities of any other 5 year old. May you enjoy each day, each moment, and fill it with joy and excitement!
C is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
@littlemamajama
Jo
Jo is 3 years old. She loves to create #art, #sing and #run.
Autism means for Jo that her neurology is different than a neurotypical individual. She experiences a lot of anxiety and is sensitive to sensory input.
Her mom Kristin wants new parents to know "You have more knowledge and experience to draw upon as you raise your second child with ASD." Kristin continues, "My child is awesome because she has the heart of a caregiver. Jo looks after her family members and adores #cuddles." Jo, may you always have the heart of a caregiver. May it always be filled with kindness and compassion. May you draw from your well of internal strength and use your experiences to raise awareness and understanding for others.
Jo is #JustLikeYou
Project: Just Like You is proud to share Jo's story!
#aprilautismawarenessmonth
#ASD
#lightitupblue
@littlemamajama
Mac
Mac loves #letters and #numbers in all #shapes and sizes. His favorite thing to do is to watch Sesame Street clips and songs about numbers and letters. He knows which letters and numbers were paired as the number and letter of the day on Sesame Street, so listening to him chatter is like listening to a bingo caller. Mac is a #movement junkie. He loves to #climb, #jump, #spin, #swing, and #run. He is a great #snuggler and often takes one of us upstairs to snuggle under the covers with him. We are pretty sure Mac is a hobbit, since he likes to eat at least 6 meals a day.
Autism Spectrum Disorder for Mac, means difficulty communicating. With lots of therapy, Mac is beginning to use language functionally and sometimes uses an assistive communication device to communicate his needs. Mac loves sensory input and will seek out sensory stimulation in some nontraditional ways. Catherine continues, "Mac is a sweet guy who finds joy in everyday pleasures, like a pizza with extra sausage, a super fuzzy blanket, or a sunny day on the beach. He is my constant reminder to not take myself too seriously. He will attempt to curl up in your lap like a poodle, even though he's more like a Great Dane. He likes ladies with long hair, especially if their hair smells good. And he likes to trace his letters and numbers on any smooth surface he can find, usually with his own spittle or greek vanilla yogurt. He makes his parents laugh - hard - every single day of his life." Mac, we know you will continue to make progress. You will continue pushing ahead. Everyday you teach us to laugh. Thank you for that wonderful gift. You are joy and kindness.
Mac is #JustLikeYou
Project: Just Like You is proud to share Mac's story!
#aprilautismawarenessmonth
#ASD
#lightitupblue
Finley
This week we are highlighting individuals from The Commonwealth Autism. Finley loves to watch auto #racing (Nascar, Indy Car, and Formula One). Tom and Jerry #cartoons! He loves looking at The State Quarters. Richard Scarry Books- the more haywire the story the better (ie strawberry jam all over the town because 2 of the Busytown trucks collided). He loves to #camp with his #family and #swim.
Autism for Finley means he has a hard time relating to other people. He generally likes to play by himself although he does like to play with his brothers and a few school friends. He is sensory seeking so he likes to swing and deep pressure which can interfere with general learning having to do difficult tasks.
According to his mom, Jody, "He is delayed in speech which interferes with communicating with adults and peers. He is also delayed in general overall learning but does have interests that he is almost on grade level such as reading. He has weakness in his grip, which affects his handwriting. Finley has improved greatly with a lot of therapy. First it was increasing his language, then it was more specialized schooling and therapy at home. His negative behaviors and safety issues have decreased greatly and his understanding of what is right and wrong, asking for help has improved." Finley gets so excited when he is enjoying something he gets the biggest smile on his face." Finley, therapy is always the way for improvement. Keep working hard and growing strong!!
Finley is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Daniel
Project: Just Like You is proud to share Daniel's story! This week we are highlighting very special individuals from Commonwealth Autism and The Founders Center of Commonwealth Autism.
Daniel is 10 years old. He enjoys #Legos, #trains, and #building things.
Autism for Daniel means he has melts downs, has a hard time socially, and prefers to be alone. He works well independently with lots of structure. He also has a difficult time with changes or surprises. His mom, Crissy writes "We limit where we go and what we do to reduce the chance of him having an episode. He was diagnosed when he was 3 years old and stayed in the public school system until age 7 when we had to fight to get him placement in a school for him." Crissy continues, "Since then, over 2 years ago, he has changed completely. They know how to handle and address his issues.
He is caring and loving. He wants to help and know he has been helpful to someone." Daniel, thank you for wanting to help others. Thank you for reaching out and giving of yourself to help make this world a better place. May your attitude and spirit always be positive.
Daniel is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Stephen
Project: Just Like You is proud to share Stephen's story! This week we are highlighting very special individuals from Commonwealth Autism and The Founders Center of Commonwealth Autism.
Stephen is 16 years old. He loves playing with his #iPad, #cooking, #eating, helping around the house, going for #walks with his dog Kismet, spending time with his #sister and #cousins, visiting his #grandparents and #aunts and #uncles, #hugs, going to #school, #swimming, #boating, #rollercoasters and rides of all kinds, #traveling, listening to #music, #wordgames, and hanging out in his room.
Autism for Stephen means "he is very bright, he isn't motivated to learn in the same way that typical kids are. Because it's very hard to get him to pay attention to things which don't interest him, he is years behind where he would be otherwise. He doesn't have many social inhibitions, which can cause problems for him, and although he likes to be around people very much, he doesn't really know how to interact with them." This is according to his mom, Meredith.
Meredith wants new parents to know, "I wish I had known that the fear and confusion would pass. I would have loved to know that although teaching Stephen can be a challenge, he would learn to deal with all of the things that most worried me then. I knew that we loved him, and wouldn't have traded him for anyone, but I wish I had known that he would bring us far more laughter than anxiety." She continues, "He is sweet and funny and bright. His uncomplicated joy is delightful. His laid-back personality often makes him the easiest person in the house to get along with. Even his less socially acceptable behaviors, which after all are often what others in the room want to do but can't, provide insight into situations or comic relief (and often both)." According to his dad, Jason, "Stephen is really loving, funny, and smart. We often think he's not paying attention, and then he'll come out with some remark that makes the whole family crack up. He is also a positive genius at Fruit Ninja." Stephen, thank you for sharing your humor, your wit, and joy. Stephen is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Pearson
Project: Just Like You is proud to present Pearson's story!
Pearson is 9 years old. He enjoys playing #Football, #Basketball, Playing with his new #puppy, Playing #Minecraft and other games, playing with his little #brother, running around, #spinning and #swinging on the #playground with #friends, hanging out with his #cousins, eating chicken wings, and going to the #movies.
Autism for Pearson means he spends a lot of time in his own little world, focused on the things he loves, hyper focused on his areas of interest. Staying focused on school work that is not of interest to him, can be very challenging. According to his mom, Kara, "He's happy when he's doing what he loves, but can grow frustrated when things don't quite go the way he had in mind. You'll see him in an NFL Football Jersey each day at school, as he pulls from roughly 40 different ones hanging in his closet. Tackling a list of chores or tasks is quite challenging for him, so we give him his to-do list, one item at a time. Pearson has an amazing memory, and he is very smart. He has vast knowledge on the topics in which he takes interest, such as world geography, minecraft, and NFL Football teams and players." Kara continues, "Pearson's diagnosis came pretty late (in recent months at the age of 9), though we have suspected it for years. So, having the knowledge has been empowering to us as parents and a wonderful thing for our family to finally know what's going on inside that brilliant, sweet mind of his. We are more patient with him, as sometimes it takes a little more time to get his attention.
His interest in sports has helped him form wonderful friendships and have access to socialization that might have been challenging if his interests were different.
Pearson, you found a love in sports! What a gift! Your competitive nature gives you an extra boost of confidence and strength. With your family and your faith, you will be able to conquer the tallest of mountains!
Pearson is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Finn
Finn is 2 years old. From an early age Finn loved #dinosaurs and #trucks. His favorite show on TV is Dinosaur Train and he gets extremely excited whenever he sees a big truck go by (which is frequent living in New England and with all the snow.) Finn loves to be #outdoors, loves the #beach and loves any type of #ball. He's getting pretty good at dribbling the soccer ball, so we definitely see #sports in his future! Finn has also fallen in love with #books. We will read one book to him and he immediately goes to grab another. He has become very curious and wants to know what everything is!
Autism for Finn means he has trouble communicating. According to his mom Amanda, "He is still non-verbal and has a hard time interacting with his peers. He wants to be social, but isn't quite sure how to do so. He also has a hard time paying attention and following commands. He currently attends daycare which has greatly increased his vocalizations, social skills and attention span. Since the diagnosis in January of 2017, Finn has started speech and will soon begin ABA therapy. We believe he is right on the edge of beginning to talk, but are hopeful that therapy will help give him that little nudge that he needs to progress. We are at the beginning of Finn's journey and are probably still in the midst of processing his diagnosis. We always knew there was something different about him, but were hoping it was just a speech delay, so hearing from the doctor that your son has Autism was still an immense shock. From that moment on however, we have found there is this amazing support system of doctors, specialists, and other families who want nothing more than to help.
Amanda continues, "Finn is awesome because everything is an amazing sight to him. Whether it's smiling up at the stars and moon whenever we get out of the car at night, chasing the waves on the beach, staring in awe at the seagulls in the sky, or even giving a standing ovation at a truck passing by.
Finn, your joy for the small things in life is everything! Thank you for reminding us all to enjoy each day and take it in stride.
Finn is #JustLikeYou
#aprilautismawarenessmonth
#ASD
#lightitupblue
Leah
Project: Just Like You is proud to present Leah's story!
Leah is 7 years old. She loves to #swim, #run, #tumble, #jump on her trampoline, and is involved with a Special Needs #Cheer Team. Her favorites are wood #puzzles #magnaform#aprilawarenessmonth shapes and loves playing with strands of #beads.
In addition to Autism Spectrum Disorder she has a Global Language Disorder as well. Autism for Leah means a complex development disorder distinguished by difficulties with social interaction, verbal and non-verbal communication, and behavioral problems, including repetitive behaviors and narrow focus of interest. Global language disorder just means she is non-verbal, she can hear but can't speak.
According to her mom Alisha, "Leah's doctor explains her diagnosis as if you can imagine that you were in a car accident or came very close to a car accident, your brain is overloaded with many fears and emotions. This is what her brain does to her senses 24 hours a day. Since her diagnosis she has adapted to her life in her own way, she is in her own world. School and therapy has helped Leah but her main struggle is communication, its what triggers her behaviors, she bites, pinches, hits, scratches. She definitely knows what she can get away with, she's extremely smart. Alisha continues "Leah does wear glasses, it was a struggle but now she is wearing them all the time. I wish I knew to spread out her vaccines. I know its not proven but I really feel this was a factor." Leah is funny, happy, joyful, and rotten at times (more than most), I would have to say she's beautiful but, I'm allowed and I hear it on a daily basis. She definitely keeps us on our toes. At times we do call her our little tornado, she likes to dump things and spill through the house." Leah, your strong will keeps you pushing on with gusto. May you always be courageous, and never let nonverbal get in the way of your purpose, energy, and focus. You are a very special girl with a very special mission in this life. Leah, today we celebrate you!
Leah is #JustLikeYou
#ASD
#aprilautismawarenessmonth
Jason
Project: Just Like You is proud to present Jason!
Jason is 19 (soon to be 20) he is fascinated with #cars (both real and matchbox cars), and loves #hockey. He started out as a hockey player on the Heroes (Hockey Reaching Out Society) and played hockey on his team for 3 years- he now mentors new kids to this awesome hockey league.
Jason was diagnosed with ADD/Aspergers Syndrome as well as a seizure disorder. According to his mom, Anita, Jason and his twin brother, Trevor, learn very differently than their peers and often in their own way and at their own pace. Jason learns better by examples and hands on learning rather than the traditional way through books in school. "They both need help and close monitoring as they learn how to live independently. Jason has had to move into an assisted living home since his disability is more pronounced than Trevor's; Jason also receives even more help than he would if he continued living at home wih his brother and me. For both twins, they have a hard time if they're given too many tasks to complete at once or even shopping for gifts. Anita continues, "With Jason, because of his seizure disorder on his frontal lobe, he gets upset easier and gets anxious in big crowds." Anita explains "it would have greatly helped my kids to have been diagnosed earlier in life rather than in their teen years. It took alot of persistence on my part to convince their doctor that they were different than their peers. It took their school and me to convince their doctor that they needed to tested for possible learning disabilities since they seemed the boys were having a hard time in school.
Anita continues "despite their disabilties, my boys work even harder to prove to everyone that their disability isn't going to hold them back from what they want." Jason, you give back to help others. You serve on your hockey team to mentor new players. You work everyday to overcome the obstacles life throws at you. May you continue to grow, thrive, and continue doing the activities you love!
Jason is #JustLikeYou
#ADD
#aspergers
Jason's Heroes Hockey: http://onemillionskates.com/heroshockey
Trevor
UPDATE: Trevor's mom, Anita, has informed me that he has been accepted to culinary school!! Congrats Trevor, we are all so proud of you!! 👏🏻👏🏻👏🏻🙌🎉 Project: Just Like You is proud to present Trevor. Trevor and Jason (featured yesterday) are twins. Trevor chose to feature his woodwork instead of pictures of himself.
Trevor is 19 (soon to be 20) he loves cooking and is anxiously waiting to be accepted in #Culinary Arts school. In Trevor's spare time, he loves action/drama #movies.
Trevor was diagnosed with ADHD/Aspergers Syndrome. According to his mom, Anita, he learns very differently than his peers and often in his own way and at his own pace. He learns better by examples and hands on learning rather than the traditional way through books in school. According to his mom Anita, "He found that creating projects like these helped calm him when he was frustrated with his classes." Anita continues, "On some days, it's hard to notice how Trevor is [differently abled.] He still has problems with his every day life skills. It would have greatly helped my kids to have been diagnosed earlier in life rather than in their teen years. Despite their setbacks, my boys work even harder to prove to everyone that their disability isn't going to hold them back from what they want." Trevor, you create amazing woodworking pieces for everyone to enjoy. May you find peace in your crafts as you continue to utilize and build upon your skills in both #woodworking and culinary!
Trevor is #JustLikeYou
#ADHD
#aspergers
Heather
Project: Just Like You is proud to present Heather's story!
Heather enjoys "any activity when I am outside with nature. I love boating with my family on the beautiful lakes where I live in sunny Florida. I love hiking when I am able. I love the ocean. But most of all I love spending time with my husband and two-year-old daughter, Bella, who is the light of my life." Heather writes "I was diagnosed at a crucial time in my life, right when I was preparing to graduate from high school, go off to college and start my adult life. An expression often heard by high school graduates is "the world is your oyster." But suddenly, I received these life changing diagnoses and felt as though the weight of the world was on my shoulders instead. I was embarrassed by my condition, so I did my best to keep it hidden from friends. Once I was in college, I was hospitalized multiple times. It was a challenge to not fall behind. My health continued to decline during those years. I had to take higher doses of steroids and for a short time chemotherapy drugs, all while trying to finish two degrees at once, complete my clinical rotations, and work. Thankfully, I didn't give up, and I did graduate from college. When I walked across the stage to get my college degree, it felt like I had finally reached the top of Mount Everest. I will never forget the hard times I to go through, because it taught me such a valuable life lesson in perseverance." She is diagnosed with Systemic #Lupus#Erythematous, #Fibromyalgia, and #posturalorthostatictachycardiasyndrome. "I have finally begun to share my story more so I can be an advocate for others who may be suffering from the same conditions. I want to encourage anyone with chronic illness that even though there may be no cure, there is still hope. Please never give up! Find the strength to keep fighting, no matter what.
Heather, there is no greater advocacy than self proclaimed ones! Heather, there is no greater advocacy than self proclaimed ones! You had these diagnosis hit you all at once, at a vulnerable time in your life, and you choose courage!
Heather is #JustLikeYou
@hevmccutcheon
Peter
Project: Just Like You is proud to present Peter's story!
"Hello my name is Peter Rowe, I am an #Australian Exhibiting #artist, self-published #children’s #book #author, #illustrator, member of the Sunshine Coast Special Olympics #Golf team and public speaker, Oh and I just happen to have #downsyndrome
I was born with Down Syndrome and other conditions that limits my ability to speak, it wasn’t until I was in my 30’s that I was introduced to Facilitated Communication (FC) – with assistance I tap out my words (and yes they are my words) onto a QWERTY board and my facilitator speaks them for me. Thanks to the unwavering love and support of my parents and family and being introduced to FC I have been able to find my voice and share my story.
I express who I am and what I wish to share through art, writing and connecting with people. I started art to assist with overcoming past trauma after some very bad experiences in the care I was in. Now my art brings me great joy and happiness and my life is full of colour and love and laughter. Writing, illustrating and self- publishing children’s books especially my “Josh the Robot” series have been a wonderful way for me to share what it feels like to be treated differently. My wish is to teach children and adults alike the importance of empathy, inclusion, diversity and to never give up, find your voice, share your story and embrace who you are because it’s ok to be different.
I am very passionate about the importance of community connections. It is vital for people to feel they are part of something that they are valued for who they are and what they offer. I believe that we all have unique gifts and all have something to offer, it is about the ability not the disability and when this is the focus you see the person and all that makes them shine. Regardless of abilities, we all have a responsibility to ensure our communities are inclusive and that we are all valued within them, make a connection and make a difference."
Peter, your words of wisdom shine! Your passion for art and writing guide your life with excitementand inspiration to all those whom you come in contact with.
Peter is #JustLikeYou
@the.peter.rowe.show
Noah
Project: Just Like You is proud to present Noah's story!
Noah is 5 years old. He enjoys #dancing, #reading, watching #movies, #gardening, and #nature #walks.
According to his mom, Jessica, "Noah has mild to moderate #Autism spectrum disorder. "He is ""average"" with social and sensory seeking quirks. He doesn't understand sarcasm, or lying yet. He is very blunt and honest. He loves routines, and gets upset when things change. He organizes compulsively. He is excellent at his academics. He doesnt know how aggressive he is, or how to read facial or body cues. "We are learning how to use feeling words to solve our problems, instead of melt downs. Self regulation is a big area of emphasis for our family." Jessica wants new parents to know, "I wish I knew that it was "ok"". He is still my baby. It's not an insult. God still made him perfect, I didn't do anything ""wrong"". I think many parents are scared of the diagnosis, and the stigma that comes with it. I was scared for him and for me. "
She concludes, "Noah is awesome because he is a dreamer!! He comes up with the best ideas for activities, toys and you name it! He is so #creative, and invents new toys, and makes up stories. He is definitely entertaining!" Noah, keep dreaming. Keep inventing. Continue to be excited about life!
Noah is #JustLikeYou
Chirag
Project: Just Like You is proud to present Chirag's story!
Chirag 16 yrs old. He likes to listen #music, play #Casio, #iPad, and go for #walks.
His mom, Mamta writes, "my child was diagnosed with #Autism. For Chirag this means he is totally a non verbal child. Because of this, we are unable to understand some times what he is trying to communicate. Chirag is physically weak and has low muscle tone. This creates difficulty to follow his daily routine." Mamta continues "Chirag is a #happy child by nature. His music brings him great joy! Chirag is now grown up. When he was younger, I used to help him with his daily routine such as brushing his teeth and getting dressed, but now he is a little more independent. I want my child to be happy. I wish I could change the diagnosis😞 But it is not possible. And now I accept this reality. God has chosen me for Chirag, and will do anything for him.
He is awesome because he doesn't care what people say or think of him. He is happy in his own world. Sometimes it is difficult for me to see him like this... but it is life and we accept it. We all need to enjoy our lives.
Chirag, may happiness fill all your days. May you enjoy the comfort of family and music. May you continue to live your life to the fullest!"
Chirag is #JustLikeYou
#ASD
@thakur.mamta7
Charlotte
Project: Just Like You is proud to share Charlotte's story!
Charlotte is 17 months. She enjoys dancing to #music, #laughing, playing with her #brothers, and #swinging. Charlotte has Down Syndrome.
Charlotte works very hard to overcome all of her obstacles. And according to her mom, Courtney, "for us it just means plenty of therapy to help her succeed. She was diagnosed prior to birth. She wants new parents to know "life [with Down Syndrome] would still be beautiful and full and that I would come to cherish the Syndrome that I thought I hated. Charlotte is the joy of my days! She is silly, stubborn, loving, and so sweet. Seeing her smile brightens up the room ,but don't that innocent smile fool you- she is ornery underneath it." Charlotte, you have only begun this journey of life. During your life, you will see doors opening all around you! You live in a very exciting time and you will have opportunities abound. Charlotte, hold your head high, walk with confidence, and know you have a very bright future!
Charlotte is #JustLikeYou
#downsyndrome
@courtneynlaing
Matthew
All this week we are highlighting athletes who participate with the Special Olympics NC. Today we share Matthew's story!
Matthew is 16 years old. He enjoys video games, working on #electronics, playing #basketball and #football. His favorite team is the Atlanta #Falcons.
For the Special Olympics, Matthew competes in the #Softball throw, running #long jump, and 100M #Dash. According to his mom, Sandra, "Matthew practices his skills on a daily basis. At home he races his family members and throws around football for preparation. At school trains he with his coach by running the track and in the gym." He has been an athlete for 6 years.
To celebrate his victories, Sandra says she gives him "pats on the back high fives, hugs (when his friends are not around). I take pictures to keep track of his accomplishments and share with family members." Matthew has Autism Spectrum Disorder.
Sandra continues, "He is unique. Although he may share the same diagnosis as others, he is own individual. He has difficulty with sensory needs which can make everyday task challenging. He knows that he is different from his other kids his age but he wants nothing more than to be treated like everyone else." According to Sandra, "he has come to terms with his limitations. If he cannot do something, he is not ashamed to say that he can't, although he will try. He has learned to try new things such foods and activities. In the past he had some behavioral challenges. He would lash out when upset, overstimulated, or angry. He has learned more self control and coping skills." Sandra wants new parents to know "I wish I could have been more prepared and educated about how to support a child with autism. "Matthew is awesome because he always tries to be the best brother, son, and friend. He has made such great strides over the last few years. He has a big heart and shows his love for others by always willing to help." Matthew, you put your heart and soul into everything you do! You want the world to see you for the amazing person you are! Matthew is #JustLikeYou
@specialolympics_nc
Avery
Project: Just Like You is proud to share Avery's story! Avery is affiliated with Special Olympics NC, who we are highlighting all week long!
Avery is 22 years old. She enjoys #competing in the Special Olympics, #Puzzles, #babysitting, #working at Transylvania Vocational Services, and riding #horses at Free Rein.
Avery competes in #Soccer, #Athletics, #Basketball, and #Swimming. According to her dad, Mack, "Avery has some activity almost every weekend of the year practicing or competing with Special Olympics. They run some, swim, and practice quite a bit." She has been with the Special Olympics for 10 years.
Avery celebrates her victories with Big Hugs and high fives with her teammates.
Avery has Autism Spectrum Disorder (Asperger's Syndrome)
Mack continues, "she has learned to work hard and listen to those who [help guide her]." She works every week day and performs common tasks (making her bed, fixing her lunch, etc.) with ease." The one thing he wants parents of newly diagnosed children to know is, "I wish I would have looked at the bright side more and enjoyed the positive attributes her condition has given her like a lack of judgment of others and a pure heart. It is very easy to get caught up in "curing" her but we are really lucky to have a child who simply loves everyone around her. "She is always the friendliest person in the room and everyone knows who she is and that she will talk to them. People have said she should run for mayor of Brevard because she can't go anywhere without knowing someone and engaging them in a conversation. And she has the talent for making them feel loved and being non-judgmental. We are blessed to have Avery who shows us and everyone she knows unconditional love all the time." Avery, may you always be the friendliest person in the room. May your warmth and smile bring peace and reassurance to all those you encounter. We are all "high fiving" you today, Avery, for just being you!
Avery is # JustLikeYou
#specialolympics
#Autism
#aspergers
@specialolympics_nc
Ethan
Project: Just Like You is proud to share Ethan's story. Ethan is affiliated with the Special Olympics NC.
Ethan is 20 years old. He enjoys his #hobbies, favorite #books, #songs, #teams they may be on, etc. listening to #music, surfing the web, #reading, #hiking, playing with his #dog Cooper, going #fishing, drag #races, and #nascar races with dad. Going to #movies.
Ethan competes in #Golf and #powerlifting.
Ethan has been an athlete for 16 years.
According to his mom, Sheila, she "lets him choose what he would like to do, it may be anything from going out to eat at his favorite restaurant, seeing a movie, just to name a few." Ethan has Autism.
Since being diagnosed at age 4 he has made so much progress and has thrived in so many aspects of his life. He has gone from being almost non verbal using a pecs book to talking non stop. He was diagnosed as severe in a moderate to severe class setting in elementary school to being re-evaluated in middle school as mild and being transistion to a mild classroom focusing more on academics.
Ethan is a 4 year member of his high school wrestling team, earning a letter his Jr year. He was on the A/B honor roll the last year or so of high school, graduated with his diploma in 2014, is now enrolled in the local community college and learning to drive.
Shelia wants new parents to know "that everything would be ok, even though we had no way of actually knowing that at the time. Don't be afraid to push them to be their best, even if they have meltdowns just give breaks as needed and keep pushing forward." Ethan is awesome because "he has never complained(much anyway), he will try anything that is asked of him.
Ethan, look at what you have done in your 20 years of life! You went from being told you were nonverbal to graduating high school and now off to community college!
Ethan is #JustLikeYou
#autism
@specialolympics_nc
@e_cassity
Kristine
Project: Just Like You is proud to share Kristine's story. She is affiliated with the Special Olympics NC.
Kristine is 45 years old. She enjoys Civil War #Reenacting, #Bird #Watching, and #Golf.
She competes in Golfing for the Special Olympics.
She writes to train for golf, "There are always exercises to do for back, arm, legs, hips, etc. Then with the actual golfing, we practice our 6 different strokes that are used in the game. So we will work on short putting and long putting, chip shot, and etc." She has been an athlete for the Special Olympics for 15 years.
Kristine writes, "I don't really celebrate, but when I do a good [job], I am happy." Kristine is diagnosed with Fetal Alcohol Syndrome (FAS) Kristine writes it affects the way she learns and she struggles with some day to day things emotionally and mentally.
She goes on further to write "I am not sure what I have done to overcome it but I just keep going and not quitting." Kristine is awesome because "I have come a long way through this life and after I moved to NC, my life improved even more. I am happy to see the new heights I will reach in Special Olympics NC and beyond." Kristine, you openly share your story to explain how you continually overcome the challenges you face, and in your words, "see the new heights you will reach in Special Olympics and beyond." You inspire us all to see new heights.
Kristine is #JustLikeYou
#specialolympicsnorthcarolina
@specialolympics_nc
Bubby
Project: Just Like You is proud to share "Bubby's" story! He is affiliated with Special Olympics NC. "Bubby" is 59 years old. He enjoys playing his #guitar, listening to #music, watching #movies, participating in all special olympic #activities, delivering meals on wheels, and having #lunch with his #friends.
He has been an athlete for 2 years and competes in #swimming, #track, #bowling, and #equestrian for the Special Olympics.
Practice and training involves one to two days a week in each sport for about 1.5 hours each practice.
Bubbly celebrates his victories by hugs, kisses, bulliten board displays in his room (ribbons, medals, awards, etc.) and treating him to the dinner of his choice.
Bubby has Down Syndrome and being involved in Special Olympics has allowed him to not only get/stay in shape but has provided him discipline and routine.
His current quardian/caregiver, T-Gay, wants new parents and caregivers to know "I wish I would have known all of the opportunities that were available to him to be involved with." Bubby is awesome because "his love is unconditional, he is happy all of the time, he is eager to try new things, he loves his environment." Bubby, your enthusiasm and kindness reach far and wide. Your happiness touches all those you know. Keep giving life your best!!
Bubby is #JustLikeYou
#specialolympicsnorthcarolina
#mealsonwheels
#downsyndrome
@specialolympics_nc
Logan
Project: Just Like You is proud to share Logan's story! Logan participates with the Special Olympics South Carolina.
Logan is 20 years old. He enjoys #Bowling, #videogames, #Golf, #baseball, Boston #Patriots, Texas #Rangers, #karaoke, and rock #music.
He competes in Bowling for the Special Olympics. According to his mom, Amy, "Logan, pretty much practices whenever he can, each Thursday throughout the year is with his Special Olympics group. But he's also on a youth league through the school year and bowls on Saturday mornings and on a school league, which begins the first week of a new year and goes on for about 6 weeks." He has been an athlete since "he was in first grade in school, so I guess since he was 6. Logan celebrate his victories with a meal or ice cream afterward." Logan was born with Tuberous Sclerious Comples (TSC) This means he has Benign Tumors that can grow anywhere in the body.
Amy explains, "He had a brain tumor which mentally delayed him (which they when in and surgically removed ). He also had a tumor in his right kidney (which they also remove along with the kidney. I was told the tumor was the size of a nerf football and Logan never complained) Also, because of this disease, he has Scoliosis and has a Shagreen patch on his lower back which is very common outward signs of TSC.
Amy wants new parents to know, "We like to encourage them to read out there as well as be educated." He had seizures soon after he was born rather then nine months later.
Logan is awesome because he's a very caring, smart, and handsome young man." Logan, may your love for bowling continue to play a positive force in your life. May you strive to be the best you can in all that you do and continue practicing kindness in all you
do.
Logan is #JustLikeYou
#TuberousScleriousComples
#specialolympicssouthcarolina
@specialolympicssc
Tate
Project: Just Like You is proud to share Tate's story! Tate participates with the Special Olympics South Carolina.
Tate is 38 years old. He enjoys riding #therapeutic #horses, #swimming, and #helping others.
He has been competing in swimming with the Special Olympics for the past 7 years. Weekly practice involves swimming 1800 Yards.
Tate has a ruptured brain aneurysm. This affects his left side hemi-paresis, left side loss of vision, and poor safety decisions.
According to his dad, William, "Tate is a very hard worker, and does not let anyone tell him he can not do something. He has never said, "Why me?", he always finds a way to excel in his life." Tate, despite life setbacks, you never let them slow you down! You keep pressing ahead with courage. As Dory in 'Finding Nemo' says - "Just keep swimming!" Thank you for inspiring us all!
Tate is #JustLikeYou
#specialolympicssouthcarolina
#brainaneurysm
@specialolympicssc
Kristin
Project: Just Like You is proud to share Kristin's story! She is an athlete with the Special Olympics South Carolina!
Kristin is 23 years old. She loves to be on the go! She enjoys participating in #sports, going to the #gym and working out, #walking, #swimming, #reading, #shopping, #plays, #respite through Midlands Special Needs Foundation and Radius #Church, attending #football, #baseball, and #basketball games, going to #concerts, going out to #dinner, going to #festivals, and going to #farmers' #markets. If you ask Kristin if she wants to go somewhere or do something the answer is YES!
Kristin competes in #swimming, #golf, and #tennis.
Kristin has always been an athlete, but just started competing in Special Olympics two years ago when we moved to South Carolina.
She celebrates her victories by photo sessions with her friends after receiving their awards. Then she goes to a restaurant for a nice meal with her fellow athletes to celebrate.
Kristin is diagnosed with Intellectual disability. This affects her math and reading skills. Kristin is an extremely hard worker and tries not to let how she is differently ABLEd limit her.
Kristin has learned many skills, behaviors, and manners through her hard work, determination, and perseverance.
Lynda wants new parents to be aware that there are "an abundance of resources available for Kristin." Kristin is a very compassionate, caring young lady. She loves to help everyone she meets and is very friendly. She is currently working for the Midlands Special Needs Foundation at a day program for adults with special needs!
Kristin, keep moving with the rhythm of life! Keep traveling, playing sports, and staying active. Let nothing slow you down.
Kristin is #JustLikeYou
#specialolympicssouthcarolina
#intellectualdisability
#athlete
#differentlyabled
@specialolympicssc
Colin
Project: Just Like You is proud to share Colin's story!
Colin is 15 years old. He enjoys playing flag football, #basketball, #kickball, #running cross country, track and field, #bowling, #swimming, participating in musical #theater, attending various sporting events, watching #movies and #TV, #traveling, spending time with #friends and #family.
Colin competes in bowling for the Special Olympics. He was 4 years old starting out by playing baseball. He has won 4 #gold medals and 1 #silver medal since he started.
According to his mom Mary, "he celebrates his victories with a high five and a hug. Also share his accomplishments with friends and family who call and/or send congratulatory messages. Sometimes [he has] a victory dinner." Colin was diagnosed with #Autism, sensory processing disorder, ADHD, and anxiety.
Colin overcomes his obstacles by having a great group of friends and teammates. He has been on the all "A" honor roll every quarter this year. He is a very accomplished athlete and was even given the most spirited award by his cross country team this past Fall.
Mary continues, "Colin didn't talk until he was three years old and then he had very limited speech. Now I can't get him to stop talking!" Mary wants new parents to know "that it would be a really tough journey at times but there has been nothing that has stopped him from reaching so many goals and surpassing them." Mary concludes "Colin is a smart, sweet, funny, talented, athletic kid. I am so proud of him and all of his accomplishments. Whether it is watching him set a new personal best in one of his track or cross country races, or dancing and singing his heart out on the stage, he amazes me everyday. His stand up comedy routines are really something to see! He constantly proves that a diagnosis doesn't have to stand in the way of someone's hopes and dreams. I know he has a bright future ahead and I can't wait to see where he goes from here!" Colin, you "constantly prove that a diagnosis doesn't have to stand in the way of someone's hopes and dreams." You continue to crush your goals!
Colin is #JustLikeYou
#athlete
#honorrollstudent
#specialolympicssouthcarolina
@specialolympicss


